Day +4 Harmony, Courage, Goal

Well let me start by wishing you all a very happy and healthy New Year and or Hogmanay. As I left you on Day +1 not a fantastic has changed to be honest. I am still on the neutropenic road where my neutrophils are ever decreasing 0.1 at time and bordering the 0.0 to -0.1 side.

The last three days have just been filled with doing what I am not good at and this spending time on my own doing very little. Although in need of the face mask I am able to pound the ward corridor with my squeaky shoes that I am sure annoys the staff yet they still smile and chat to me each time I pass. I try to do six lengths four times a day and believe it is paying dividend to ms and mobility.

Although sleeping isn’t really continuous for me through the night as I cant switch of my brain (or bladder), I am managing to cat nap where possible between my hectic daily routines of the laundry, mouth washes, gargles, blood and temperature readings, tablets, this sample that swab etc, etc, you get my drift. The days are going a little faster but still thanking myself lucky that I feel as well as I do.

The doctors and staff still appear to be happy with my progress but remind me daily that this is still only the beginning.

MS wise… I feel quite stable and normal (whatever that constitutes these day) with only the normal daily head and hand tremors along with the dull aching spider pains in my legs. Nothing the Pregabalin doesn’t control.

The biggest turn up for the books I guess is blood sugar related… Although we know that steroids and glucose medications will play with your levels, I had not even taken into consideration the fact that my blood sugar machine was so far out of calibration? Next job… email Nexus for some calibration fluid?? Once I had admitted defeat with allowing the hospital machine to be better than mine, my sugars came down enough for me to stop having to keep injecting a rapid acting insulin which was really getting me down. Now I can let the bruises repair on my stomach, type with two fingers now and get away with eating the box of Roses my wife has just sent me mmmmmm.

Last night (NYE) was happening in my room… I had the best of the MOS 80s groove Vol. 3 pumping through my head phones, cracking some moves around the miniature bottle of JD my sister left me Christmas day whilst smelling the sweet smell of Camomile and Honey tea – I know how to live? And for those of you who know me… I’m sorry I have put that bad thought in your head!!

Finally before I go I want to thank you for reading my blogs, for your kind messages of support throughout this journey so far and to wish you all a very happy and healthy 2017 wherever you are in the world.

To my fambo… I’m so proud of the three of you dealing with daddy not being there and cant wait to hold and kiss you. You give me the strength to do this and never leave my heart, mind body or soul. I think I might have to start reading your journal soon.

Big hugs

Mark x