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Could this be a sign of change? - Day +82

  • Mark Rye
  • Mar 19, 2017
  • 1 min read

So yesterday we took the boys out to the park as normal and Henry wanted to take his footballs with him. Not a problem I said but I don't know who is going to run about after them?

We arrive at the park and I kick the balls down on to the field as the boys begin to run after them, then from absolutely nowhere I find myself jogging towards them and kicking the ball hack and forth?? What was happening? I haven't jogged "albeit for a few seconds/minutes at a time" for years! And I actually had control over my legs and feet and didn't fall over? Could this be a sign?

Today I do feel as though I have done a marathon and ache like I have never ached before!

On another note, I had a head, neck and spine MRI on Thursday in preparation of seeing my neaurologist early next month. It will be interesting to see if any of the active legions are still active air if there is any new activity? I hope to be the final sign off and discharge appointment with my haematologist consultant Dr G on Tuesday, so fingers crossed and I will keep you updated.

I'm remaining strong and positive but have to keep reminding myself it is still very early days.

Big love x

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